Logo for Level Ahead ABA

Connecting with Autism Support Groups

Author image

Laura NG, MA BCBA
Clinical Operations Manager

Understanding Autism Spectrum Disorder

Autism Spectrum Disorder (ASD) is a complex developmental condition that encompasses a broad range of challenges and characteristics. This section aims to provide an overview of what autism is and its prevalence in society.


What is Autism?

Autism, also known as Autism Spectrum Disorder (ASD), is a neurodevelopmental disorder characterized by challenges with social skills, repetitive behaviors, speech, and nonverbal communication. The term "spectrum" in ASD reflects the wide variation in strengths and challenges possessed by each individual with autism. What is autism provides a detailed exploration of the condition, emphasizing that while some individuals with ASD may require significant support in their daily lives, others may live independently and have distinct skills and abilities.


Autistic individuals may experience difficulties with self-regulation, leading to moments of emotional or sensory overwhelm, referred to as meltdowns or shutdowns. Additionally, routines often play a crucial role in providing a sense of safety and aiding transitions between activities for those with ASD.


Prevalence and Recognition

Autism affects individuals worldwide regardless of race, ethnicity, or socioeconomic status. Recent estimates suggest that autistic individuals make up about 2% of the population, with about 1 in 36 children receiving an ASD diagnosis. This increase in recognition is partly due to improved diagnostic criteria, which now integrate conditions that were once considered separate, such as Asperger's syndrome and PDD-NOS, into the spectrum diagnosis.


The table below outlines the prevalence of ASD among the general population:

Population Prevalence of ASD
General Population 2%
Children Diagnosed 1 in 36

Understanding the prevalence of autism is crucial for educators, who are likely to encounter autistic students in the classroom. These students may have trouble interpreting and mirroring social cues, leading to what psychologists call the "double empathy problem," where both autistic and non-autistic individuals may struggle to understand each other's social communication.


It is essential to recognize the signs of autism, which can vary widely among individuals. For more information on recognizing autism in different age groups, readers can explore signs of autism in children and autism symptoms in adults. Additionally, while the exact causes of autism are not fully understood, ongoing research continues to explore potential genetic and environmental factors.


Support Groups for Autism

Support groups play a pivotal role in the journey of individuals with Autism Spectrum Disorder (ASD) and their families. They provide a forum for sharing experiences, offering support, and disseminating valuable information. This section delves into the significance of these groups, the variety available, and the advantages they offer to members.


Importance of Support Groups

Support groups for autism serve as a critical resource for those affected by ASD. According to NCBI, a significant proportion of families with an autistic member have participated in an autism-specific support group. These groups are particularly beneficial for parents of children with additional challenges such as self-injurious behavior, sleep problems, or severe language deficits. They often become a lifeline for parents and individuals seeking to better understand autism and manage everyday difficulties. For comprehensive information on ASD, readers can explore what is autism.


Types of Autism Support Groups

There are four primary types of autism support groups designed to cater to the varied needs of the autism community:


  1. Peer-led Groups

  2. Educational Groups

  3. Professionally-led Groups

  4. Family-focused Groups


Each type of group addresses different aspects of autism care and provides distinct forms of support. For instance, peer-led groups might focus on shared experiences, while educational groups provide updates on the latest research and effective strategies. Professionally-led groups can offer expert guidance, and family-focused groups help entire families navigate the complexities of autism care.


Benefits of Joining

Joining an autism support group comes with numerous benefits:


  • Community and Connection: Groups help in reducing feelings of isolation by connecting individuals and families to others who understand their situation.

  • Coping Strategies: They facilitate the sharing of coping mechanisms and practical advice for day-to-day challenges.

  • Information Sharing: Members can access the latest information, resources, and advice on autism symptoms in adults and signs of autism in children.

  • Emotional Support: Support groups provide emotional solace and an outlet for discussing specific situations related to autism.


Organizations like the Autism Society offer support through various programs, including a National Helpline and affiliate network, which are invaluable in helping individuals find the right support group.


By joining an autism support group, individuals and families gain access to a supportive network that enhances their understanding of causes of autism and improves their ability to cope with the condition. Participation in these groups can significantly impact the quality of life for those on the autism spectrum and their loved ones.


Resources for Autism Support

Finding the right support can be a transformative experience for those touched by Autism Spectrum Disorder. Support groups and resources offer solace, insight, and a community for individuals with ASD, their families, and caregivers. Below are some key resources that offer support and services to those seeking assistance in navigating the challenges and triumphs of living with autism.


ShineLight Services

ShineLight Services is a beacon of hope for families on their autism journey in Cumberland and the surrounding areas. They provide comprehensive support that encompasses residential assistance, employment support, and guidance in community living. ShineLight's mission is to shine a light on the potential of individuals with autism, advocating for community integration and offering services across multiple counties in North Carolina.


  • Services Provided: Residential Support, Supported Employment, Community Living

  • Areas Covered: Multiple counties in North Carolina

  • Contact Information: ShineLight Services Contact Page


By focusing on a brighter future, ShineLight Services extends its support to families and individuals, helping them to connect with essential autism support groups and resources.


Autism Society Tidewater Virginia

The Autism Society Tidewater Virginia (ASTV) is committed to creating a nurturing community for individuals with autism and their families. ASTV orchestrates various age-specific support groups, monthly meetings, and web chats that foster a network of peers in the Hampton Roads region. They also offer specialized gatherings like the Men's Autism Support Hangout (MASH) for paternal caregivers, inclusive online game nights for teens and adults, and an Information & Referral service connecting people with tailored resources.


  • Services Provided: Support Groups, Parent Web Chats, Game Nights, Resource Directory

  • Regions Supported: Hampton Roads - Virginia Beach, Williamsburg, Chesapeake (more areas to be added)

  • Contact Information: ASTV Contact Page


ASTV's programs are designed to enhance the quality of life for those within the autism community by offering spaces for connection and mutual support.


National Helplines and Online Resources

The Autism Society plays a crucial role in providing nationwide support through its National Helpline, affiliate network, and comprehensive training programs. Individuals and families can contact experienced Information & Referral Specialists for guidance and access to a vast range of resources. From public policy efforts to safety initiatives, the Autism Society is determined to drive meaningful change and extend support to the autism community at large.


  • Services Provided: National Helpline, Information & Referral Specialists, Training, Public Policy Advocacy

  • Accessibility: Nationwide through phone and online resources

  • Contact Information: Autism Society Contact Page


For those seeking further information on ASD, including autism symptoms in adults, signs of autism in children, and causes of autism, the Autism Society and its network of affiliates provide invaluable knowledge and support.

These resources play a pivotal role in offering support, education, and advocacy for those affected by autism. By leveraging these platforms, families and individuals with ASD can gain access to a network of support that empowers them to lead fulfilling lives and build connections within their communities.


Evidence-Based Practices for Educators

Educators and school personnel play a pivotal role in supporting the learning and development of students with Autism Spectrum Disorder (ASD). It's crucial to apply evidence-based practices (EBPs) to ensure that these students receive the most effective education tailored to their unique needs.


Laws and Regulations

Two critical federal laws, the Every Student Succeeds Act (ESSA) and the Individuals with Disabilities Education Act (IDEA '04), require that educators utilize evidence-based academic and behavioral practices for children with autism. These laws aim to ensure that students with disabilities, including ASD, have access to a free and appropriate public education that is tailored to their individual needs.

Federal Law Detail
ESSA Ensures high standards for all students, including those with ASD
IDEA '04 Guarantees special education and related services to eligible children with disabilities

For more information on the legal framework surrounding education for students with autism, explore what is autism.


Effective Academic and Behavioral Practices

The National Professional Development Center (NPDC) on Autism Spectrum Disorder has identified 27 evidence-based practices to enhance outcomes for students with ASD. These EBPs encompass a range of instructional strategies, interventions, and curricular modifications designed to meet diverse learning needs. Educators are encouraged to select practices that align with the student's age, the expertise of the staff, and the resources available.


When implementing these practices, it's essential to:


  1. Clearly define the target behavior for the student.

  2. Collect baseline data to understand the starting point.

  3. Regularly monitor progress and adjust strategies as needed.


This process helps ensure that the chosen EBPs are effectively supporting the student’s academic and behavioral growth.


Individualized Education Plan (IEP) Considerations

An Individualized Education Plan (IEP) is a critical document that outlines the educational goals and the specific support services a student with ASD will receive. When crafting an IEP, educators should:


  • Determine the target behavior for the student.

  • Collect and analyze initial data to establish a baseline.

  • Define measurable goals within the IEP.


It is also important to regularly collect data on the student's behavior to assess the effectiveness of the implemented EBP. Ensuring fidelity in the implementation of the EBP is vital for achieving the desired educational outcomes for the student.


For further insights into supporting individuals with ASD, consider reading up on autism symptoms in adults, signs of autism in children, and causes of autism. These resources can provide additional context and understanding for educators looking to deepen their knowledge of autism and better support their students.


Health and Well-being in Autism

The health and well-being of individuals with Autism Spectrum Disorder (ASD) are critical areas of focus, as they can significantly impact quality of life. By understanding the unique health challenges and exploring strategies for stress reduction, individuals with ASD and their families can work towards improving overall well-being.


Functional Health in Adults with ASD

Adults with ASD often face disparities in functional health and well-being when compared to their neurotypical peers. Research shows that they report worse functional health, lower health-related quality of life (HRQoL), and reduced social quality of life (QoL) scores. These challenges are more pronounced in certain demographics within the autism community.

Group Physical HRQoL Mental HRQoL Social QoL
Women with ASD Worse compared to neurotypical women Reduced compared to men with ASD Reduced compared to men with ASD
Men with ASD Comparable to neurotypical men Better compared to women with ASD Better compared to women with ASD

Understanding these health disparities is crucial in addressing the specific needs of adults with ASD. By recognizing the autism symptoms in adults, families and healthcare providers can tailor interventions to improve functional health outcomes.


Quality of Life Factors

Quality of life (QoL) for individuals with ASD is multifaceted and influenced by various factors. Mental health-related quality of life, in particular, is significantly worse in adults with ASD. For women with ASD, both mental HRQoL and social QoL are notably lower than their male counterparts.


Efforts to enhance the quality of life should consider these nuances and prioritize interventions that address both physical and mental health needs. This may include tailored healthcare services, occupational therapy, and social support systems that understand the unique experiences of individuals with ASD.


Mindfulness-Based Stress Reduction

Mindfulness-Based Stress Reduction (MBSR) is a therapeutic approach that has shown promise in improving disability-related quality of life for adults with ASD. This intervention not only enhances mental HRQoL but has also been effective in reducing symptoms of anxiety and depression.


Adopting MBSR practices can serve as a powerful tool for managing stress and improving overall well-being. It is a complementary approach that can be integrated alongside traditional support and education interventions to provide a holistic strategy for enhancing the lives of adults with ASD.



The focus on health and well-being in autism is essential for ensuring that individuals with ASD can lead fulfilling lives. By addressing health disparities, quality of life factors, and incorporating stress-reduction techniques like MBSR, there is an opportunity to make a meaningful difference in the lives of those affected by ASD. To learn more about ASD and its impact, explore our sections on what is autism, signs of autism in children, and causes of autism.


Community Engagement and Advocacy

Community involvement and advocacy are essential elements in supporting individuals with Autism Spectrum Disorder (ASD) and their families. Engagement with the broader community helps to increase awareness, acceptance, and understanding of ASD. Advocacy efforts work towards meaningful change and improved resources for those affected by autism.


Autism Awareness Month

April is recognized as Autism Acceptance Month, a period dedicated to promoting acceptance, understanding, and inclusion of individuals with ASD. During this month, there are heightened efforts to connect with the community and share valuable resources that support autism awareness. The Autism Society encourages individuals to get involved through various activities and provides downloadable resources to bolster understanding and support of autism. This month serves as a catalyst for year-round efforts to enhance public awareness about what is autism and autism symptoms in adults, as well as signs of autism in children.


Advocacy by Autism Societies

The Autism Society is a pivotal organization in advocating for meaningful changes within the autism community. They offer resources, news, events, and support to individuals affected by ASD. These efforts are geared toward influencing policies and initiatives that improve the quality of life for those living with autism. The society's advocacy work spans various aspects of life, including education, employment, healthcare, and community living.


Connecting with Local Resources

Local resources play a crucial role in providing support and guidance to individuals with ASD and their families. Organizations like ShineLight Services and the Autism Society Tidewater Virginia (ASTV) offer tailored support groups and services that cater to specific needs within the autism community.


ShineLight Services assists in connecting individuals to autism support groups in Cumberland and surrounding areas, offering residential support, supported employment, and community living services. They aim to provide a brighter future for individuals with autism through various support services and community advocacy.


The ASTV offers age-specific support groups, weekly parent web chats, and inclusive online game nights for teens and adults with autism. They also provide an Information & Referral service to connect caregivers, individuals with autism, and professionals with the best local, state, and national resources, including a comprehensive Online Resource Directory.

Program Service Offered Contact Information
Information & Referral Guidance on resources Via phone/email (ASTV)
Online Resource Directory Updated provider/resource list Accessible online (ASTV)
Support Groups Tailored to age/need Monthly meetings, virtual options available (ASTV)
Online Game Nights Social and problem-solving skills Inclusive for teens/adults with ASD (ASTV)

Engaging with local resources is vital for building a supportive network that can help navigate the complexities of ASD. By connecting with organizations such as ShineLight Services and ASTV, individuals and families can find the support they need and contribute towards a more inclusive and understanding community.

A candid image of Elon Musk, who publicly revealed his autism diagnosis, in a press conference.
By Laura NG, MA BCBA Clinical Operations Manager 17 May, 2024
Learn about Elon Musk's public revelation of his Asperger's syndrome, a form of autism. Learn how this impacts perceptions of autism in the tech industry.
An image of the renowned genius with autism rumors, Albert Einstein, in classic B&W filter.
By Laura NG, MA BCBA Clinical Operations Manager 17 May, 2024
Explore the historical speculation that Albert Einstein may have been on the autism spectrum. Understand the traits and evidence that fuel this discussion.
A bunch of autistic kids playing with an AAC device to enhance their lifestyle with autism disorder.
By Laura NG, MA BCBA Clinical Operations Manager 16 May, 2024
Explore AAC devices designed for individuals with autism to enhance communication. Learn how these tools support expression and interaction for a better lifestyle.
A collection of puzzle pieces, one of the well-known autism awareness symbol across the world.
By Laura NG, MA BCBA Clinical Operations Manager 16 May, 2024
Discover the key symbols of autism awareness used globally. Learn about their meanings, origins, and how they promote understanding and support for the community.
A young kid learning how to swim, an effective drowning prevention method for autistic children.
By Laura NG, MA BCBA Clinical Operations Manager 15 May, 2024
Protect your child with essential drowning prevention tips for autistic children. Learn about safety measures, supervision techniques, and secure swimming practices.
Autistic children happily playing under the sun while safely avoiding potential summer dangers.
By Laura NG, MA BCBA Clinical Operations Manager 15 May, 2024
Learn about summer dangers for autistic children and how to protect them. Discover tips on supervision, environment safety, and heat exposure prevention.
Autistic children swimming in the pool, designed with essential safety features for kids' protection
By Laura NG, MA BCBA Clinical Operations Manager 15 May, 2024
Ensure safety with our essential pool safety tips for children with autism. Learn strategies to prevent accidents and create a secure swimming environment.
Kids playing near the beach as one of the fun and engaging summer activities for autistic children.
By Laura NG, MA BCBA Clinical Operations Manager 15 May, 2024
Find engaging and sensory-friendly summer activities for autistic children. Learn about options that promote fun, learning, and social interaction in a safe place.
Autistic children happily spending their vacation time on summer camps doing various activities.
By Laura NG, MA BCBA Clinical Operations Manager 15 May, 2024
Explore top summer camps designed for autistic children. Discover how these inclusive camps provide fun, learning, and growth in a supportive environment.
A kid playing block games  in her bedroom as scientists observe how autism develops in children.
By Laura NG, MA BCBA Clinical Operations Manager 14 May, 2024
Scientists uncover crucial details about the origins of autism in children. Learn about the latest research findings on how autism develops and what influences it.
More Posts
Share by: